Prader-Willi syndrome (PWS) is associated with shorter life expectancy, impaired quality of life, and high healthcare and caregiving costs — all of which place a heavy burden on families and the healthcare system. That’s according to a systematic review of more than 130 published studies. Data also found that…
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Once-daily treatment with pitolisant is generally safe and helps reduce excessive daytime sleepiness (EDS) and abnormal behaviors in people with Prader-Willi syndrome (PWS) — notably with the repurposed therapy given at higher doses, and especially in children. That’s according to the full results of a proof-of-concept trial that tested two…
The past two weeks could be described as a master class in emotional whiplash — a wild ride that would leave even the most stoic parent reaching for the breath mints and tissues. Last month, I wrote about riding the emotional roller coaster of Prader-Willi syndrome (PWS), and…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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